It was incredibly hard to get on the first time, and that night at home was not a good one. He wasn't used to not moving his legs independent of each other and the bar is significantly heavier than what the casts were. The ortho and rehab nurses told us to remove the braces every few hours for a few minutes to check for blisters and play with his feet to get them used to being touched - after 3 weeks in casts, they were hypersensitive. So we did. I bathed him at 9:30 that night, he fell asleep at about 10. Mind you, this was after he'd been crying and was pretty much inconsolable all day. He woke up at 2am to eat, and I changed his bum and took the braces off for about 5 minutes. His feet and ankles were a little red, nothing too serious. Put the braces back on, laid him back down. He slept again till about 7:30, ate, got a clean bum....
...and after only about 8.5 hours, this was what I found Saturday morning:
This blister (above) is what was on his right foot and where my pinkie finger is is a little black pressure sore. Below is what I found on his left foot. 2 blisters on the inside of his foot and that massive pressure sore all around the back of his ankle.
Put a call into the orthopedic surgeon on call and was told the braces stay off until we saw the orthopedic doctor treating his clubfeet on Monday. The blisters only got bigger and the pressure sore never diminished. He was squirmy and cranky all day Saturday (who could blame him?!) but by Sunday afternoon the screaming had turned into that high-pitched "I'm in pain!" chin-shaking, breath-holding wail. We ended up in the ER at Primary Children's getting the blisters lanced and the sores treated and making sure the little infections around the wounds were only localized and not spreading. We got home at about 10, and he cried/screamed until about 4 Monday morning. Saw his ortho on Monday afternoon. Braces are off indefinitely obviously until he fully heals. At that point she said we'll have to go to a plan B in his treatment. He'll probably need a couple of re-castings done to correct whatever margin of curvature his feet re-take after so much time without any support, but after that they'll have to find some other method of treatment since it's appearing he can't tolerate the boots. This doesn't make us happy campers, as it appears (and the ortho that saw us in the ER said so) that the reason he developed such serious sores so fast was that they probably mis-fit the braces in the first place. Grrrr. We were sent home with specialized dressings we change twice a day until we see her again on Friday to check the healing and discuss optoins for the rest of the treatment.
The sores looked better this morning and he seems to be going back to his normal mellow happy self. He's only needed Tylenol twice since early Monday morning as opposed to during the weekend, needing it every 4-5 hours, and he's sleeping a lot harder and falling asleep faster. He's actually doing better than his mama...I haven't cried this hard or prayed so honestly for someone else's relief in my life. My poor Nugget :(
2 comments:
I am so sorry for you two! Those look sooooo painful. Not to mention lancing said painful owies. I know had that is. Wes had to have a sore on his bumb lanced twice w/out any anesthetic. It was a very sad day, so I can only imagine. Its hard to listen to them cry and not be able to help them....hopefully he feels better right now that he's boot free. I hope they find a different option for your little guy that will help him in a pain free way. Good luck!
Oh, baby. Poor little dork he is (not that he's done anything dorkish, but with two dork parents, he's kinda doomed in that department).
I'm glad he's feeling a bit better, and that you are too. What a headache! Clearly these shenanigans will call for extra embarrassing snuggles and kisses in front of his friends when he's older. It's only fair to balance things out ;)
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