Thanksgiving Day luvins

I know this comes a little after the fact, but here it is. I've never had more to be grateful for than I was this past Thanksgiving. I'm grateful that my Heavenly Father trusted me enough to send me my Nugget and his special needs. I'm grateful I have such a fantastic family and husband to support him. And I'm grateful that Caden's personality is the way it is - for all he's needed done, for all he will still need to be put through, I can say without hesitation that he is a child of pure joy. I hear his laugh, and the feeling I get is what I envision it must feel like to see God smile.
This Thanksgiving, he decided to spread his love with my sister, his Aunt Leicha. She was lying on the floor in a turkey-coma and he waddled over to share his blankie. Every time she'd snug up to it, he'd go "awwww" and snug right down next to her:

Lettin her give him some cuddles:

And him giving snuggles back:

The boy entertained the whole family for a good 30 minutes that night. I have a feeling he'll be doing that his entire life.

Favorite time of day

Caden LOVES bath time. Absolutely loves it, and he has ever since he was teeny tiny. Well it's become such an established routine, and baths have been at about the same time every night, that tonight when mommy was a little slow in getting the bath stuff ready, he decided he would just get himself ready. At about 7:30 pm he army crawled down the hall, poked his head into the bathroom, I wasn't there so he moved across the hall to his bedroom...I wasn't there either, so he moved back into the hall between the two rooms, rolled onto his side, and started trying to get his sock off. I about cried I was laughing so hard while watching him from the other end of the hall. Unadulterated hilarity. Every day I wonder how he could possibly do anything to make me love him more...and then tonight happened and the love-o-meter just shot up a bazillion points.

Mr. Happy Pants in his favorite place to play...the bathtub:

Sock puppets

Physical therapy from Early Intervention came last week. They gave me a pair of socks with little beads sewn into the top cuff, something fun to see and play with to make Nugget more aware of his feet (since they've been hidden in boots or casts most of his life) so he'll play with his toes and get a good stretch on his spine. Well he got bored with them on his feet so I stuck them on his hands:

Cash Cab and not-quite-butterfly kisses

For reasons we still don't understand, Caden loves Cash Cab. It's a show on the Discovery Channel - this cab driver is really the host of a little game show and when you get into his cab, he quizzes you with general knowledge type questions all the way to your destination and you win money as you get answers correct. We don't know if it's the timbre or sound of this guy's voice or the lights in the cab itself, but Nugget will stop EVERYTHING he's doing if he hears the theme song and he'll watch an entire 30 min of it without losing interest. Here he is staring at the host:

And still staring (same episode, 20 min in) as the lights go disco and blink and flash on the roof of the cab:

And new this week; kisses. Or sort-of kisses. When I'm holding Caden...if I chew on something, or even if I have nothing in my mouth and just make the sound and motion of chowin down, he'll open his mouth wide and come in for the lunge. I can't decide if they're kisses or if he just thinks he's a bird and and I'll give him the food in my mouth. If you look close (pictures enlarge if clicked on) you can see his tongue out (and my mouth closed of course). I think in this particular shot, I had some Reese's Pieces in there. Nutjob:

Halloween '09

So, this Halloween was kind of a 'poke fun at' holiday. Some therapists that work with kids with the Distal Arthrogryposis (which is what Caden has) lovingly call them "lobsters" because of the way their hands are kind of stiff and move like little mittens or 'claws'. Darn it all if I didn't find a lobster costume on Babies R Us's website...

This is what the back looked like as he was on his tummy and hands:

And this is the full Halloween get-up at my Mom's house Halloween night; Me and Brando the chefs and our little lobster. YUM. (he's squeal-laughing, by the way, not crying) Where's the butter?

Halloween was so fun. Nugget was so patient. Didn't mind being stuffed into the costume for 3 days, didn't mind sittin in his pot. And actually he thought the pot was kinda fun, just put his hands on the edges and hung out like it was some fun ride as we toted him around. The family loved him, and the pictures turned out so cute. Great day. The holidays are going to be so much more fun now that we have a kid of our own.

Ponseti's Angels

Every once in a while a person of note whom you've never met will fall ill, face a tragedy, or pass away ... and you suddenly find yourself feeling emotions for that person who is unknown to you. When I read today that Doctor Ignacio Ponseti, father of the Ponseti method of treatment for clubfeet, passed away I felt like crying. He was 95 and up until a couple of years ago, was still seeing and actively treating patients. And then I DID cry. I have not been one of the blessed parents to have met him personally, and at first I was a little surprised at the strength of the emotions that I felt toward this man I never met. And yet, in a profound way, he HAS touched my life, and especially the life of my Nugget, in a way that truly is miraculous. When I think of what COULD have been, what his life COULD have been like, and now isn't and won't be because of the tremendous accomplishments and strides Ponseti made in the medical field, I have nothing but overwhelming gratitude for the impact he has made upon, literally, the entire world. I know I will always be grateful for what he has done for me and for the precious children whom he has given a new and normal stride in life....Ponseti's Angels. I fill with gratitude, and a little heartbreak now, to say that Caden is among them.

Bittersweet nostaglia

This may not look like much and in fact from this vantage point, it seems like rather plain old potato soup in a big pot on the stove.

It's my grandmother's clam chowder. I decided it was soup weather a few days ago, and called my mom for the recipe. Decidedly easy to make. Decidedly difficult to get down tear free.
Through no skill of my own, I'm sure, it turned out just like hers. The smell of it brought back memories of her little kitchen with its funky carpet and the wall next to the table that was always warm to the touch (it was actually where the vents to the furnace were, heh). I could smell the house, I could hear the clink of the spoons against the china bowls she'd serve it in, I could see her in the room, sitting across the table watching us eat it with that smile of hers....she always looked so regal, her features so refined in their age, her hair just the right shade of gray.
I didn't realize until tonight how much I actually miss my Grandma Trotta. I was living in Washington still when she passed away, and wasn't able to make it back for the funeral. I had no one to share the grief with, no one to seek the comfort from because they were hurting just like me. Worst, though, I think...I never got to say good-bye. My good-bye came in the form of a few emailed words written by me and spoken by my sister at her funeral, and a few fingers kissed to her gravestone-less mound of grass at the cemetery when I flew down for Memorial Day.
I guess this is as fitting a tribute as any, really. If there was one thing Grandma Trotta loved, it was to do things for the family, to make us grandkids smile. Well it did just that, Grandma, even if there were more than a few tears mixed in, and your little Nugget great-grandson got to try some as well; I do wish you could see him now, but I'm comforted here in knowing that the day he was born, he left your arms for mine. I miss you so much, and love you always. Give Otis a few extra belly rubs from me.

If one were to ask me how my day went, in the spirit of Grandma Trotta, my answer would be a smile and the simple words, "Miserably well."

"I gots rhythm"

Men out there, look away, and my deepest apologies to my brothers; my son is a dancer.

His exersaucer has a tree that plays music if its buttons are pushed enough times. Caden was pushing them deliberately to get to the music, and then as soon as it would kick up he'd start jivin - bouncing his feet, smackin his hands on the edge of the saucer, grinning. I managed to get the camera in time to catch him in the act. He'd stop when the music did, reach up and push the buttons, and then boogie once the music started up again. Absolutely hysterical. Honestly, when does this child not make us laugh?

Bouncy mattress + hilarious 8 month old =

...this. Last night I'd undressed him in preparation for bath time and had him in his crib. Well he discovered that his mattress is both soft and bouncy. He can sit up mostly on his own and now only tips backwards when he wants to. And he wanted to. Every time I sat him up, he'd flop backwards, bounce as he hit, and then laugh. Dunno if you can see it in the video (you can on the camera cause it's a little less grainy) but he's got little ab lines on his tummy from hoistin the casts and now his bar around. My kid is ripped! (and I'm kinda jealous!)

Camping...kind of

So the family camping trip to the cabin came and went a little faster for me and Nugget than it did the rest of the fam. We got the okay from the pediatrician to go up, and on Thursday he did just fine. Thursday night to Friday, not so much. He was up 4 times through the night (for a kid that's been sleeping through the night since he was 2 months old) and then wouldn't nap at all on Friday. After a trip to Mirror Lake on Friday afternoon, he threw up everything so I called it quits and he and I came home Friday night. We did manage to get a few fun shots of him though. This first one is when we just got there and I pulled him out of the car. He loves the outdoors:

This was a little later that day, Thursday. I put him in a back carrier and toted him about. LOVED it...obviously:

Thursday night. Both him and I are beat:

Nugget's nasty week

We've been really really lucky since Caden was born, and he's only had 1 cold since December. Well his luck wore out this week :( Last Monday night he was kinda grump, and Tuesday morning he woke up at about midnight with a fever of close to 101, had a horrible nasty diaper, and was all around just discontent. All that day he kept having nasty diapers, I couldn't keep his fever down, and he was completely uninterested in solids OR his bottles. Took him to his pediatrician and they're culturing for crypto, giardia (or however that's spelled) and rotovirus. Well the diarrhea kept on but by Friday he was KIND of acting better, his fever broke, and he was a little more interested in food. But he's gone back downhill now. The fever's back, the diarrhea's back, and now tonight he threw up twice and I had to force him to take his post-bath bottle, something he NEVER doesn't want. And his little bum is just so raw from it all, the diaper rash is horrible and it hurts him to sit for too long.

Dad and Aaron (thank you!) came over tonight to give him a blessing and he seems to be sleeping peacefully. I'll be calling the pediatrician again tomorrow regardless because after his bath tonight I noticed that his little fontanel is starting to get a little concave, beginnings of dehydration methinks. What a week to fall ill :( If he doesn't vastly improve by Tuesday, I'm going to have to call off camping with the family up at the cabin this weekend and stay home alone with him. No WAY would I be taking him up to the Uintas while he's like this. Poor Nugget. Get better soon, love!

"Tha's mah blanket.."

We discovered a couple of months back that Caden's a blanket baby. He never really took to a pacifier, and didn't stay interested in his thumbs for too long. But he loves him a good snuggle with a blanket. Tonight I went in to check on him around 10, and I just had to get a picture of the way he was cuddled with his blanket. He HAS to have it tucked under one or between both arms, and since my mom got him a seahorse that plays music and bubble noises, he has to be touching that too. I find it hysterically ironic, given everything, that his favorite blanket is his feet blanket.
Sweetest dreams, Nugget...

It's a zoo

We were kind of spontaneous on Wednesday and decided after Caden woke up from his after-therapy nap to go to the zoo. We packed up, headed down. He wasn't too impressed with the bigger animals, the open-enclosure type, because he couldn't really see 'em or understand what he WAS seeing when he did. But he loved the smaller critters. He squealed and scared a porcupine. Loved the leaves in the Madagascar hut. He liked the up close and personal encounter with the giraffe. One was in the barn and we walked in to say hi. His eyes kind of scanned up its legs and then he leaned back to look at the rest of it and his eyes got HUGE. So cute. His hair was also way spiky that day, and you can really see it against the backlight on the fence (picture enlarges when clickied).

We left about 5 ish, maybe 5:30 and realized we'd need gas before going home, so we stopped at a Sinclair in downtown Salt Lake. We filled up, I went in to buy some drinks, and when I came out Branden goes "You're going to love this," gets into the car, turns the key ... and nothing. Totally dead. It's near 100 degrees and Caden's asleep in his car seat in the backseat. Splendid. So in a "oh please oh please have left work late" frenzy, I call my sister. Aunt Sessie and her primo Nissan to the rescue - she was close enough that she flipped a u-ie and came back to meet us. We used her car to jump our (took us about 20 min to get enough of a charge though) and then she followed us home. Who knew a trip to the zoo really would turn out to be a zoo? In the 10 minute drive from the zoo to the gas station, the battery had totally died. Bless Nugget though, he was so patient. Didn't know what the heck was going on, didn't know why we were out playin' in the heat on a street corner but he enjoyed looking at the cars in the intersection and he got to spit-wash his Aunt Sessie's sunglasses, so what wasn't to like about the day?

"I can't stoooooop!"

We put Caden in his bouncer this afternoon....and he would NOT stop bouncing. He just kept going, right in time with the music of the bouncer. I only captured a few seconds of what went on for literally 7 minutes straight.

The "Caden Cuteness Trifecta"

We've discovered a few things about our Nugget. He's cute when his hair is spiky. He's way cute in stripes. And he's cute-coma inducing when he's in bib overalls. What do you get when you put all 3 together on the same day? Behold:

Blowing raspberries at the camera:

Martinis and formula all around!

Caden just rolled over! I've been working with him on rolling him from his back to his tummy, which is hard for him because with his Arthrogryposis, his hips are kind of stiff. Before I knew it, he'd tucked one arm, pushed up on the other, and over to his back he went. I thought, ok was that just an accident? Luck of the balance? Nope. I put him on his tummy again and not a minute and a half later, over he went. And then he did it 3 more times. No accident :D This is SUCH a huge accomplishment for him given the Arthrogryposis. And I found out yesterday that his name is Gaelic, and means "little battle" or "little fight". Little battle indeed :D Way to go, Nugget.

5 month pictures

We had Caden's 5 month pictures done earlier this afternoon. Ordinarily this would have been forbidden (taking a shot with my phone while the photographer was shooting), but I wanted to send a shot to Grandma in Texas and he was being so dang cute with the photographer she let me :D He LOVES his baths, so we had to use a bathtub prop :) More pictures to come, I'll post the link to the proofs when JP Penney uploads them.

900 numbers at this tender age?

Nope! But he's discovered that he can hold the phone for a few seconds all by himself, and he knows that Grandma's voice comes out of it.

And if Grandma won't come out of the phone now, he says, I'll just gum her out myself.

Linkage

So, I've gotten some questions regarding how to get at my book. Here's a link to the Amazon.com-ish site where it's being sold.

https://www.createspace.com/3381464

The price listed was not set by me (mine'd have been much lower!!), but it was the minimum allowed given the paper, the design of the cover, number of pages, etc.

So anyway, yeah. There she be :)

Bookworm

2 years ago, I did this thing called National Novel Writing Month. They hold a contest every November, and the goal is to write 50,000 words of a mini-novel in just one month. Well I won, got my 50k words in. The prize was an offer of free printing by a company that's an extension of Amazon.com called CreateSpace. So here it is, my first published and printed book ever. Was actually quite a rush to get this in the mail :D